Blood Brotherhood Program and Genetic Information Protection

Subject: Other Medical Specialties
Pages: 2
Words: 304
Reading time:
< 1 min

Other people with hemophilia can be found through community counts and support networks, which only involve members who are voluntarily willing to assist hemophilia patients. It is important to remember that the hemophilia occurrence rate is significantly higher among men than women because it is an X-chromosome-linked gene. The Hemophilia Federation of America has the Blood Brotherhood program, which allows diagnosed families to find others with the same issue. GINA does not adhere only if someone discriminates against another based on their genetic condition. However, these support networks include people willing to step forward to help other people suffering from hemophilia.

New technologies, such as genetic screening, can significantly change every person’s life and the development of human civilization as a whole. In this regard, it is necessary to note the fact that the importance of genetic information contained in human DNA increases in various spheres of its life and the need for legal science, given this fact, to effectively protect the rights of citizens to prevent harm by the unlawful use of their genetic information. Based on the analysis of problems arising in connection with the use of genetic information about a person, it can be concluded that it is necessary to follow the legislation in this area, such as GINA, including to prevent discrimination of citizens based on the genome. By its legal nature, genetic information is an element of a citizen’s personal, family secrets and is included in the larger concept of a subject’s privacy. Therefore, it should be protected by law as an intangible good. However, the existing legal regulation cannot take into account the peculiarities of genetic information and provide effective protection against unlawful possession of this information and its use, including from actions aimed at establishing restrictions based on hereditary diseases.